Wednesday, January 20, 2016

Day +51

And just like that, another shoe drops. Claire woke up last night shivering. She took her own temperature, then came in at about 4:30am to tell us that it was 103.4. We immediately called the bone marrow team, and they told us to go right to the hospital. When we got there, bypassing the ER and going straight to ICS (immunocompromised unit), her blood pressure dipped dangerously low. After pushing fluids through all three of her central lines it was still low, so Dr. H decided to transfer her to the PICU (pediatric intensive care unit) to be safe. They are the only ones who can give her meds to help raise her blood pressure. She hasn't needed them so far, but her blood pressure is still hovering pretty low. She is also NPO, which means she isn't allowed to eat, darn it. Probably the worst part is that she was put in the same room she was originally in after she relapsed in August, where we all had several very dark days. The PICU is full, so this room is our only option. It is probably a bacterial infection, but those labs are still pending. Keep breathing, keep praying, keep moving forward.





10 comments:

  1. Praying for you guys and hoping for the best💕

    ReplyDelete
  2. Oh sister, yes breathe and know that you are surrounded with love and prayers.

    ReplyDelete
  3. Many prayers for you and Claire!!

    ReplyDelete
  4. Yes, deep breaths, many prayers and lots of love being sent to you! Love you all!!

    ReplyDelete
  5. Deep breaths, many prayers and lots of love being sent to you! Love you all!!

    ReplyDelete
  6. Praying for you and your name is at the temple

    Uncle Dean-Aunt Barbara

    ReplyDelete
  7. Dont know where that Mom/Grandma came from and can't get rid of it.

    ReplyDelete